Association Française des Malades Atteints de Porphyries (A.F.M.A.P)

Country: 
France
Organisation Name: 
Association Française des Malades Atteints de Porphyries (A.F.M.A.P)
Address: 
14 rue Faraday
75017 Paris
Email: 
Association.porremovephyries@gmail.com
Website: 
www.porphyries-patients.org
Contact: 
President
Name: 
Sylvie LE MOAL
Email: 
Association.porremovephyries@gmail.com
Tel: 
+ 33 1 6 13 80 92 57
Porphyria Related Activities: 
AFMAP provides assistance and support to all porphyria patients and relatives : It aims at improving the quality of life and access to cure. AFMAP claims a strong advocacy role and defence of patients rights. Our organization is 100% volunteer.